9 months since I posted and life goes on. We have have diagnosis two actually that confirm what I knew donkey ages ago. We have been slowly regressing which is what this is all about. Slowly but surely Tim is less Tim. I am losing him. Hard to watch. Right now not so bad. We will see how this goes. Caregiving was sort of my thing as in the usual fix meals, do laundry as opposed to the be in charge of most everything. Like living alone EXCEPT that you have another person who is not a total participant. Helpful and not. I have minimal support as I have a severe lack of friends and mini family at a distance and all old. Things I can and cannot control. I am getting lessons almost daily. We have been accepted into a Medicare program that is underwhelming me. New and not so helpful as I had hoped. Next week a home visit and we shall form a better judgment after that. Saving me are online reading, books, and a sense of humor. Laughter .... it can be funny. Heatbreaking and sad.... talk about a roller coaster of emotions hourly daily.
